Tag: Wheelchair User
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What You Need to Know About LGMD2I
At Shared Light Project – YANA, we’re all about shining a light on rare diseases and mobility challenges because awareness leads to understanding, and understanding builds stronger support for one another. Today, we’re putting a spotlight on Limb-Girdle Muscular Dystrophy Type 2I (LGMD2I), a rare, inherited condition that gradually weakens the muscles around the hips,…
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Understanding Autoimmune Autonomic Small Fiber Neuropathy
Autoimmune Autonomic Small Fiber Neuropathy (AASFN) is a rare, chronic condition in which the body’s immune system mistakenly attacks the small unmyelinated nerve fibers that regulate the autonomic nervous system – especially those responsible for heart rate, blood pressure, temperature regulation, digestion, and bladder function. In this form, the condition is linked to the presence…
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Choosing Boundaries: A Path to Self-Respect
The writer reflects on their journey toward establishing personal boundaries after experiencing physical challenges. They emphasize that kindness and compassion shouldn’t come at the expense of self-abandonment. Choosing self-respect, peace, and protective boundaries, they affirm the importance of prioritizing one’s own well-being, even if it causes discomfort for others.
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I want to be held the way I hold others.
The writer expresses a deep need for emotional support and vulnerability, feeling overwhelmed and fatigued. They long for reciprocal care, acknowledging their own struggles while typically being a source of strength for others. Emphasizing the importance of being held and recognized, they encourage others to embrace their feelings and inherent worthiness.
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Embracing Healing on Difficult Days
The Shared Light Project supports individuals navigating chronic illness and complex healing journeys. It emphasizes that healing continues even during difficult days, promoting the importance of rest and emotional processing. The message reassures participants they are not alone, encouraging them to honor their pace and feel safe on their paths to recovery.
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Some Days Are Harder Than Others
The post emphasizes that if you’re struggling with a chronic illness or mobility challenge, you are not alone. It encourages expressing emotions and seeking compassion, allowing space for grief and healing. The importance of emotional and communal healing is highlighted, affirming that hard days are valid and personal healing takes time.
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The Power of a Quiet No: Nurturing Yourself
Listening to our bodies and intuition is crucial for self-care, especially when dealing with chronic conditions. Choices can feel significant, and honoring our feelings—whether affirming or cautious—is essential for emotional and spiritual health. Resting and saying no are not weaknesses but acts of self-awareness. It’s important to embrace our unique needs with kindness.
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Latex Allergy + Fruit = Flare-up? YES! Let’s talk about it
If you’re on a healing journey like me, managing inflammation and trying to listen to your body, this is huge. You might be unknowingly sabotaging your system by eating foods that trigger immune confusion. Most people don’t realize this, but if you have a latex allergy, there’s a hidden trap in your fruit bowl. Many…
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Tiny Acts of Kindness for Your Soul
Kindness begins within, despite life’s challenges. Prioritize rest, listen to your body, and allow for setbacks. If overwhelmed, simplify and adapt to changes. Honor your emotions, and remember your efforts are enough. In a fast-paced world, take time to breathe, and choose compassion for yourself. You are not alone.
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How to Support Your Body During Healing Flare-Ups
Navigating chronic illness requires compassion and resilience. Healing is cyclical, not linear, and acknowledging setbacks is essential. The nervous system is a crucial messenger, not an enemy. Embrace flares through meaningful rituals and energy management. Rest is not failure; it’s part of the process, leading to deeper understanding and connection.
Shared Light Project 