by Danielle Hoelle, CEO/President of Shared Light Project, Holistic Spa Owner
At Shared Light Project – YANA, we’re all about shining a light on rare diseases and mobility challenges because awareness leads to understanding, and understanding builds stronger support for one another. Today, we’re putting a spotlight on Limb-Girdle Muscular Dystrophy Type 2I (LGMD2I), a rare, inherited condition that gradually weakens the muscles around the hips,… Read more: What You Need to Know About LGMD2I
by Danielle Hoelle, CEO/President of Shared Light Project, Holistic Spa Owner
Autoimmune Autonomic Small Fiber Neuropathy (AASFN) is a rare, chronic condition in which the body’s immune system mistakenly attacks the small unmyelinated nerve fibers that regulate the autonomic nervous system – especially those responsible for heart rate, blood pressure, temperature regulation, digestion, and bladder function. In this form, the condition is linked to the presence… Read more: Understanding Autoimmune Autonomic Small Fiber Neuropathy
by Danielle Hoelle, CEO/President of Shared Light Project, Holistic Spa Owner
The writer reflects on their journey toward establishing personal boundaries after experiencing physical challenges. They emphasize that kindness and compassion shouldn’t come at the expense of self-abandonment. Choosing self-respect, peace, and protective boundaries, they affirm the importance of prioritizing one’s own well-being, even if it causes discomfort for others.
by Danielle Hoelle, CEO/President of Shared Light Project, Holistic Spa Owner
The writer expresses a deep need for emotional support and vulnerability, feeling overwhelmed and fatigued. They long for reciprocal care, acknowledging their own struggles while typically being a source of strength for others. Emphasizing the importance of being held and recognized, they encourage others to embrace their feelings and inherent worthiness.
by Danielle Hoelle, CEO/President of Shared Light Project, Holistic Spa Owner
The Shared Light Project supports individuals navigating chronic illness and complex healing journeys. It emphasizes that healing continues even during difficult days, promoting the importance of rest and emotional processing. The message reassures participants they are not alone, encouraging them to honor their pace and feel safe on their paths to recovery.
by Danielle Hoelle, CEO/President of Shared Light Project, Holistic Spa Owner
The post emphasizes that if you’re struggling with a chronic illness or mobility challenge, you are not alone. It encourages expressing emotions and seeking compassion, allowing space for grief and healing. The importance of emotional and communal healing is highlighted, affirming that hard days are valid and personal healing takes time.
by Danielle Hoelle, CEO/President of Shared Light Project, Holistic Spa Owner
Listening to our bodies and intuition is crucial for self-care, especially when dealing with chronic conditions. Choices can feel significant, and honoring our feelings—whether affirming or cautious—is essential for emotional and spiritual health. Resting and saying no are not weaknesses but acts of self-awareness. It’s important to embrace our unique needs with kindness.
by Danielle Hoelle, CEO/President of Shared Light Project, Holistic Spa Owner
If you’re on a healing journey like me, managing inflammation and trying to listen to your body, this is huge. You might be unknowingly sabotaging your system by eating foods that trigger immune confusion. Most people don’t realize this, but if you have a latex allergy, there’s a hidden trap in your fruit bowl. Many… Read more: Latex Allergy + Fruit = Flare-up? YES! Let’s talk about it
by Danielle Hoelle, CEO/President of Shared Light Project, Holistic Spa Owner
Kindness begins within, despite life’s challenges. Prioritize rest, listen to your body, and allow for setbacks. If overwhelmed, simplify and adapt to changes. Honor your emotions, and remember your efforts are enough. In a fast-paced world, take time to breathe, and choose compassion for yourself. You are not alone.
by Danielle Hoelle, CEO/President of Shared Light Project, Holistic Spa Owner
Navigating chronic illness requires compassion and resilience. Healing is cyclical, not linear, and acknowledging setbacks is essential. The nervous system is a crucial messenger, not an enemy. Embrace flares through meaningful rituals and energy management. Rest is not failure; it’s part of the process, leading to deeper understanding and connection.
by Danielle Hoelle, CEO/President of Shared Light Project, Holistic Spa Owner
Creating an inclusive environment for event attendees is crucial, as disability can affect anyone unexpectedly. Many innovations initially designed for accessibility, such as curb cuts and closed captioning, have benefitted the general public, demonstrating that inclusive design leads to broader conveniences. Advocating for equity fosters progress and enhances participation.
by Danielle Hoelle, CEO/President of Shared Light Project, Holistic Spa Owner
The Shared Light Project aims to establish a support network in Volusia County for individuals facing rare medical conditions and mobility challenges. The initiative seeks to raise awareness about disabilities, remove stigma, and advocate for financial assistance for mobility aids and medical needs, fostering community support and understanding.
At Shared Light Project – YANA, we’re all about shining a light on rare diseases and mobility challenges because awareness leads to understanding, and understanding builds stronger support for one another. Today, we’re putting a spotlight on Limb-Girdle Muscular Dystrophy Type 2I (LGMD2I), a rare, inherited condition that gradually weakens the muscles around the hips,… Read more: What You Need to Know About LGMD2I
Autoimmune Autonomic Small Fiber Neuropathy (AASFN) is a rare, chronic condition in which the body’s immune system mistakenly attacks the small unmyelinated nerve fibers that regulate the autonomic nervous system – especially those responsible for heart rate, blood pressure, temperature regulation, digestion, and bladder function. In this form, the condition is linked to the presence… Read more: Understanding Autoimmune Autonomic Small Fiber Neuropathy
The writer reflects on their journey toward establishing personal boundaries after experiencing physical challenges. They emphasize that kindness and compassion shouldn’t come at the expense of self-abandonment. Choosing self-respect, peace, and protective boundaries, they affirm the importance of prioritizing one’s own well-being, even if it causes discomfort for others.
The writer expresses a deep need for emotional support and vulnerability, feeling overwhelmed and fatigued. They long for reciprocal care, acknowledging their own struggles while typically being a source of strength for others. Emphasizing the importance of being held and recognized, they encourage others to embrace their feelings and inherent worthiness.
The Shared Light Project supports individuals navigating chronic illness and complex healing journeys. It emphasizes that healing continues even during difficult days, promoting the importance of rest and emotional processing. The message reassures participants they are not alone, encouraging them to honor their pace and feel safe on their paths to recovery.
The post emphasizes that if you’re struggling with a chronic illness or mobility challenge, you are not alone. It encourages expressing emotions and seeking compassion, allowing space for grief and healing. The importance of emotional and communal healing is highlighted, affirming that hard days are valid and personal healing takes time.
Listening to our bodies and intuition is crucial for self-care, especially when dealing with chronic conditions. Choices can feel significant, and honoring our feelings—whether affirming or cautious—is essential for emotional and spiritual health. Resting and saying no are not weaknesses but acts of self-awareness. It’s important to embrace our unique needs with kindness.
If you’re on a healing journey like me, managing inflammation and trying to listen to your body, this is huge. You might be unknowingly sabotaging your system by eating foods that trigger immune confusion. Most people don’t realize this, but if you have a latex allergy, there’s a hidden trap in your fruit bowl. Many… Read more: Latex Allergy + Fruit = Flare-up? YES! Let’s talk about it
Kindness begins within, despite life’s challenges. Prioritize rest, listen to your body, and allow for setbacks. If overwhelmed, simplify and adapt to changes. Honor your emotions, and remember your efforts are enough. In a fast-paced world, take time to breathe, and choose compassion for yourself. You are not alone.
Navigating chronic illness requires compassion and resilience. Healing is cyclical, not linear, and acknowledging setbacks is essential. The nervous system is a crucial messenger, not an enemy. Embrace flares through meaningful rituals and energy management. Rest is not failure; it’s part of the process, leading to deeper understanding and connection.
Creating an inclusive environment for event attendees is crucial, as disability can affect anyone unexpectedly. Many innovations initially designed for accessibility, such as curb cuts and closed captioning, have benefitted the general public, demonstrating that inclusive design leads to broader conveniences. Advocating for equity fosters progress and enhances participation.
The Shared Light Project aims to establish a support network in Volusia County for individuals facing rare medical conditions and mobility challenges. The initiative seeks to raise awareness about disabilities, remove stigma, and advocate for financial assistance for mobility aids and medical needs, fostering community support and understanding.
Shared Light Project 